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Showing posts with label Recovery. Show all posts
Showing posts with label Recovery. Show all posts

Saturday, April 6, 2013

Open Heart Surgery Recovery Is a Full-Time Job


You are now home from the hospital, and while the healing process is well underway, or you would not have been discharged, there are miles to go. There seem to be so many instructions to remember. You simply will not be up to much in the first few weeks, and in some cases, for several more. I won’t understate this. Yes, an upbeat approach by the hospital medical staff may have sent you waltzing home and it’s thrilling to be leaving the hospital, where you haven’t been permitted to sleep through the night. Yet you are returning home greatly fatigued, with a medications schedule to manage, possibly a tank of oxygen, and perhaps recurrent irregular heartbeats or other complications that remain unresolved. Now is the time to dedicate yourself to the hard work of recovery. Alternating rest and exercise, and above all patience with the physical and emotional trials ahead, is your assignment for the next several weeks.

You and your caregiver will mostly be on your own unless your particular situation requires a treatment plan that includes post-op visits from a home health care nurse. Even if that’s the case, now is the time to review any guidelines your hospital medical team has given you about what to be aware of.

If you have purchased the paperback or downloaded the e-book version of The Open Heart Companion: Preparation and Guidance for Open-Heart Surgery Recovery, from my website http://www.openheartcoach.com, it’s time to reread Chapter 5, “The Challenges You May Face.” This chapter provides detailed information not only on challenges that may arise in your recovery, but it also supplies solutions as well. For example, on the subject of feeling isolated: “This is the time to find other open-heart surgery survivors and their caregivers to talk to. Swap stories, share information, hear what other families have gone through. Just knowing that you are not alone as you go through your rehabilitation can lift the veil of isolation. There can be a tendency to hold one’s surgery and recovery experiences too privately, but not reaching out to others will only deprive you of receiving compassionate support. If you are feeling isolated, do yourself a favor: reach out to friends and family, and look for a heart surgery support group locally or online.” However, whenever in doubt about what you may be experiencing specifically, contact your designated medical liaison for professional diagnosis or medical attention. No question or concern is too trivial.

For most of us, there is a difficult recovery challenge from the time we leave the hospital until we are healed and strong enough to enroll in a local rehab program. That’s one of the reasons for my book, to bridge this gap as so little medical attention is focused on the recuperation period that lasts anywhere from four to eight weeks. We thought getting through surgery was the biggest hurdle. However, the hurdle is greater when we are home on our own with not much progress to report fast enough -- and without all those experts in the hospital to lean on.

Every recovery is different. If you’ve been told to expect improvement “two days forward, one day back,” you might be disappointed to experience instead only one good day (a period of energetic spunk) followed by two, three, or even four days of just plain feeling lousy. Even to meet the assignment of increasing your walking time from five minutes to ten minutes a day may feel like an insurmountable task at first. You may also be swinging in and out of temporary depression. (In my case, I wished the discharge nursing staff had emphasized the psychological challenges of recovery, not just the physical stresses.) Or, you may feel “off,” and think you might be coming down with a virus. That might be the case, but feeling off can be due to other things as well: you may have become anemic (as I did); you may be having an allergic reaction; sleep deprivation may have caught up with you—there are many possibilities. Know that everyone goes through discouragement, yet those who are informed to expect ups and downs will fare far better.

Recovery after surgery takes time. There’s often a feeling of “being all alone.” Because I, and dozens of patients and caregivers who were interviewed for The Open Heart Companion, have gone through open-heart surgery recovery ourselves, I offer the help you need via a free monthly phone support group, a newsletter specifically on recovery, a highly informational paperback (also available as an e-book), and general practical tips. Stop by my site at http://www.openheartcoach.com to see how we can help you recover faster.


The Benefits of Having a Home Team Following Your Heart Surgery or Other Major Surgery


It’s essential to organize a Home Team before you go in for heart surgery, even if you have little time before your surgery to plan it. On the other hand, if you have just gotten home from the hospital, don’t worry it’s not too late. A Home Team is a group of friends and family who are willing to assist you in your recovery following your surgery. Make a list of up to fifteen people, family and friends (but not your primary caregiver) who would be glad – even honored – to be called to help out. Pick a leader among these friends and engage her or him to contact the others about the tasks ahead. Set up a revolving schedule of assignments for your first three to four weeks at home.

Your Primary Caregiver Has The Most Important Role

Who will your primary caregiver be; your spouse, your partner, a friend, or another family member? In my new book, The Open Heart Companion: Preparation and Guidance for Open-Heart Surgery Recovery the following scenario is explained to help you better understand their importance: Suddenly your caregiver, your close personal ally, has the extended responsibility for all previously shared arrangements – nursing aid, household tasks, transportation, medical and social plan coordination. It can become overwhelming and too much for one person. That is why it is essential that you line up a supportive Home Team to pitch in. Your primary caregiver needs assistance and taking care of too. Once you are home and recovering, he or she is now “on” 24/7. He or she also needs continuing acknowledgment, appreciation and love from you. Plan to regularly express your gratitude. Find out how your loved one is feeling – every day. Though sometimes you won’t feel like it, remember to smile, and show you care and appreciate all that is being done for you.

Five basic tasks to assign to your Home Team

1. Dinner nightly
Some friends will like to prepare a home cooked meal for both patient and caregiver, while others can pick up a heart healthy take-out meal. Since the reality of landing back home means the primary caregiver has antenna focused on you continuously, your caregiver loved one will appreciate the sit-down break at dinner time.

2. Buddy system
During the many hours and days of convalescence, neither patient nor primary caregiver wants to feel isolated at home. Anticipate a buddy system in advance. Is there a friend who has been though open-heart surgery who will agree to check in with the patient regularly? Is there someone that the heart patient can call spontaneously? Many basic questions can be answered this way, by a friend or family member. Naturally, any substantial recovery question requires picking up the phone and calling your designated medical professional. Maybe you know, or know of, a former heart patient who also is a medical professional? Arrange chat times (perhaps twice weekly) with him or her. Primary caregiver and patient should also plan regular phone time with a best friend independently, to be free to let their hair down to tell it like it is.

3. Running errands
Who – friend or neighbor – would be willing to be counted on to run to the pharmacy or to deposit or pick up laundry or dry cleaning? How about someone who will shop for staples at the supermarket or buy a box of thank-you notes? Recruit a list of volunteers beforehand. It’s critical to have this in place to enable you to focus on getting well.

4. Housekeeping
In the hospital take-home instructions, there are very specific physical directives that must be honored while the sternum (breastbone) is healing. You are not to lift more than five to ten pounds for four to six weeks. As well, you are to avoid pushing/pulling activities with your arms, and also avoid heavy one-armed lifting for three months. This eliminates carrying groceries, carrying a toddler, vacuuming, shoveling snow, mowing the lawn, raking leaves – even wiping up a kitchen counter with a sponge can be challenging in the first couple of weeks. It is best to schedule others for regular housekeeping duties for at least four to six weeks and/or consider hiring a house cleaner for the short term.

5. Chauffeuring
An open-heart patient may not resume driving for six to eight weeks – until the sternum is fully healed. Because you don’t want to risk re-injuring the sternum should a passenger airbag need to be deployed, you might be advised to ride in the back seat using the shoulder seat belt. That said, you can ride in a car as soon as you’re home – to a medical appointment, to the store, to eat out. However, all these outings become a lot of driving for the primary caregiver, so line up chauffeur volunteers.

Recovering from heart surgery can be challenging, but with these tips and more tips on planning ahead found in The Open Heart Companion you can ensure that your recovery will go smoothly.